These past two weeks I have felt a bit like Dorothy lost in the land of Oz. But instead of Lions, Tigers and Bears… it has been doctors, Ots and PTs oh my! I made a huge mistake.When we moved here 10 months ago I decided to wait until after Jay’s IEP to look for therapy. I was naive enough to believe that Jay might actually receive the therapy he needed in school. I told you BIG mistake.
Don’t get me wrong, the school has been great. BUT… as long as Jay is academically functioning well, meaning his so-called disabilities are not affecting his grades, well then no services provided. Jay does get some services. He has a wonderful resource teacher who he works with in class and pulls him out of class when necessary. He is allotted breaks throughout the day when sensory experiences get to be too much. We on our own got him the NEO/Alpha-smart word processor which he uses throughout the day in order to participate and complete classroom assignments. With all these accommodations, Jay has been able to get all A’s. Academically he is doing incredibly well. The fact that Jay is in 4th grade and still cannot sign his own name in cursive does not matter. The fact that my boy is 10 and wears sweatpants to school every day so he does not have to worry about trying to button or unbutton regular pants or deal with snaps… that does not matter. The fact that his processing speed, eye hand coordination and spatial relations skills are all below average… yup does not matter. Well it matters to me!
After asking for another meeting with the OT and realizing that things were not going to change with the school… I knew it was time to seek therapy outside of the school. Once again I was naive, and thought it would be a matter of me just choosing the right place. Little did I know that there were wait list over a year-long at some these places in order to get an after school appointment. And that is what we need. I do not want to have to pull Jay out of school early 2 to 3 times a week. Nor do I think the school would be happy about that. But even more importantly… Jay would hate that. It would mess up his routine. But finally after pleading and begging and practically having to slip someone a fifty under the table, (I really did not do that but believe me the thought crossed my mind… the things we parents will result to for the sake of our kids.) we found a place. And it was one of my first choices too. But are you ready for the kicker? They only have one appointment starting in May which is at 2:30pm every other Tuesdays. I snapped it up. Even if this means I will need to pull Jay out of school half an hour early on those days. Even if this means he will only get therapy one time every other week. And even though that is the same day that I have Girl Scouts with Grace. Girl scouts the one thing I do just with and for Grace. Her special mommy and me time. Girl Scouts which meets every other Tuesday. I am praying that the great Autism Gods in the sky are smiling down on me and that the two will not conflict… but I know deep down the reality. We all do. If they do… guess which one will suffer? Poor Gracie.
Now you see why I feel like Dorothy lost in Oz. But in my case I cannot just click my heels three times and everything will magically fall into place.